ALS Resource Page

Disclaimer

The M.A.C.K. Foundation provides links to external organizations as a resource for informational and educational purposes only. Inclusion of these links does not constitute an endorsement, partnership, or affiliation with the linked organizations. We encourage users to review each organization’s policies and resources to determine what best meets their individual needs.

You Are Not Alone

An ALS diagnosis can feel overwhelming for both individuals and families. The M.A.C.K. Foundation is committed to helping families find trusted resources, emotional support, educational information, caregiver guidance, and organizations dedicated to assisting those affected by ALS.

This page is designed to help connect families with organizations and tools that may provide support during every stage of the journey.

National ALS Organizations

The ALS Association

Website: https://www.als.org

Services Provided:

  • ALS education and awareness

  • Equipment assistance

  • Support groups

  • Care services

  • Research funding

  • Advocacy resources

Muscular Dystrophy Association (MDA)

Website: https://www.mda.org/disease/amyotrophic-lateral-sclerosis

Services Provided:

  • ALS clinics

  • Medical support

  • Family resources

  • Research updates

  • Community support

ALS Therapy Development Institute

Website: https://www.als.net

Services Provided:

  • ALS research

  • Clinical trial information

  • Educational resources

  • Patient-focused updates

Team Gleason

Website: https://teamgleason.org

Services Provided:

  • Technology assistance

  • Communication devices

  • Equipment support

  • Financial assistance programs

  • Caregiver support

I AM ALS

Website: https://www.iamals.org

Services Provided:

  • Advocacy initiatives

  • Community support

  • Educational resources

  • Legislative awareness

  • Patient and caregiver connection

Caregiver Resources

Family Caregiver Alliance

Website: https://www.caregiver.org

Services Provided:

  • Caregiver education

  • Stress management resources

  • Support groups

  • Planning tools

  • Family support guidance

Caregiver Action Network

Website: https://www.caregiveraction.org

Services Provided:

  • Caregiver assistance

  • Educational materials

  • Online support

  • Family caregiving resources

Mental Health & Emotional Support

Mental Health America

Website: https://www.mhanational.org

National Alliance on Mental Illness (NAMI)

Website: https://www.nami.org

These organizations may provide:

  • Mental health resources

  • Emotional wellness support

  • Counseling referrals

  • Family assistance

Veterans & ALS Support

U.S. Department of Veterans Affairs ALS Information

Website: https://www.va.gov

The VA may provide:

  • Benefits information

  • ALS-related medical support

  • Caregiver resources

  • Veteran assistance programs

Clinical Trials & Research

ClinicalTrials.gov

Website: https://clinicaltrials.gov

Search for:

  • ALS clinical trials

  • Research studies

  • Emerging treatments

  • Medical research opportunities

Communication & Assistive Technology

Bridging Voice

Website: https://bridgingvoice.org

Tobii Dynavox

Website: https://us.tobiidynavox.com

These organizations may help with:

  • Speech devices

  • Eye-gaze communication systems

  • Voice banking

  • Assistive technology

Financial & Disability Assistance

Social Security Disability Benefits

Website: https://www.ssa.gov

Benefits.gov

Website: https://www.benefits.gov

These resources may help families find:

  • Disability assistance

  • Financial support programs

  • Government aid

  • Healthcare resources

ALS Educational Resources

Centers for Disease Control and Prevention (CDC)

Website: https://www.cdc.gov/als

National Institute of Neurological Disorders and Stroke (NINDS)

Website: https://www.ninds.nih.gov

Educational topics include:

  • Understanding ALS

  • Symptoms and progression

  • Treatment options

  • Ongoing research

Emergency & Crisis Support

If you or a loved one are experiencing emotional distress or crisis, please seek immediate assistance.

988 Suicide & Crisis Lifeline
Call or Text: 988
Website: https://988lifeline.org

A Message From The M.A.C.K. Foundation

The M.A.C.K. Foundation believes no family should walk through ALS alone. Our mission is to spread awareness, provide guidance, encourage caregivers, and connect families with organizations that may help support them during difficult times.

Together, we can continue to promote faith, education, compassion, service, and hope.

M.A.C.K. Foundation
Faith. Education. Service. Legacy.