A diagnosis of ALS can feel overwhelming—but you are not alone. The M.A.C.K. Foundation is here to help you take your first steps with clarity, support, and compassion.

Disclaimer

The M.A.C.K. Foundation provides links to external organizations as a resource for informational and educational purposes only. Inclusion of these links does not constitute an endorsement, partnership, or affiliation with the linked organizations. We encourage users to review each organization’s policies and resources to determine what best meets their individual needs.

Start Here: Immediate Steps

  • Contact the ALS Association to connect with support and services

  • Schedule an appointment with a specialized ALS clinic

  • Build your care team (neurologist, therapists, primary doctor)

  • Talk with family and establish your support system

Find Care Near You

Multidisciplinary ALS clinics provide coordinated care including neurology, respiratory support, therapy, and nutrition.

Get Support Right Away

  • Join a support group (virtual or in-person)

  • Speak with counselors or care specialists

  • Connect with other families navigating ALS

Understand What Comes Next

  • Treatment options and symptom management

  • Assistive equipment and home modifications

  • Financial planning and insurance coverage

  • Long-term care considerations

Organizations like Muscular Dystrophy Association and ALS Therapy Development Institute may be able to help with this step of the process.

Take the Next Step

Focus on what matters most right now. Help is available, and you don’t have to face this alone. Also Remember that not everyone situation will be the same.

“When my husband was diagnosed with ALS, I had no idea what to expect. Through education, support, and learning from others, I was able to care for him for over 17 years.

Don’t be afraid to ask for help—and always remember, you are not alone.”

— Phairleanette M. Dorsey, Founder of the M.A.C.K. Foundation